Mental well-being of parents with a child with a visible difference

Jan 1, 2018

This project aims to study the mental well-being of parents with a child with a cleft lip with or without palate or an infantile haemangioma. Both are visible conditions that could potentially impact parents. A total of 400 parents (226 mothers, 174 fathers) completed questionnaires assessing their stress and distress, along with their child’s emotional and behavioural problems.

Data was collected by another PhD student. I am involved in analysing and reporting the data.

Marije van Dalen
Marije van Dalen
Postdoctoral Researcher

Researching how digital interventions and online environments shape the lives, health, and resilience of adolescents—especially those living with chronic illness.

Related

Publications

Emotional and Behavioral Problems in Children With a Cleft Lip With or Without Palate or an Infantile Hemangioma

This article features a cross-sectional study on 182 children with a cleft lip with or without palate or infantile hemangioma.Analyses indicate that parents reported less emotional and behavioural problems compared to other children. Problems reported were mainly related to learning difficulties. Mothers also reported more emotional and behavioural problems.
Marije van Dalen, Mireille Hermans, Willem Leemreis, Vivian Kraaij, Peter de Laat, Suzanne Pasmans, Sarah Versnel, Maarten Koudstaal, Manon Hillegers, Lisbeth Utens, Jolanda Okkerse
PDF Project DOI

Parenting children with a cleft lip with or without cleft palate or a visible infantile haemangioma: a cross-sectional study of distress and parenting stress

This article features a cross-sectional study on 400 parents of children with a cleft lip with or without palate or infantile hemangioma.Analyses indicate that these parents report less parenting stress than other parents. Parenting stress is mainly related to child behaviour problems and additional condition-related problems.
Marije van Dalen, Willem Leemreis, Vivian Kraaij, Peter de Laat, Suzanne Pasmans, Sarah Versnel, Maarten Koudstaal, Manon Hillegers, Lisbeth Utens, Jolanda Okkerse
PDF Project Video DOI

Talks

Parenting children with a cleft lip with or without cleft palate or a visible infantile haemangioma: a cross-sectional study of distress and parenting stress

A talk focusing on the results of the paper published in the Cleft Palate-Craniofacial Journal.
Jul 14, 2021 United Kingdom
Project