Visible differences

Patients' experiences of primary healthcare and dermatology provision for alopecia

Collaboration between Alopecia UK and the Centre for Appearance Research. This study describes the results of an elaborate survey on healthcare experiences of adult patients with alopecia.

Do congenital and acquired causes of visible difference predict distinct appearance-related psychosocial outcomes?

This brief research report looks at differences in psychosocial outcomes for people with an acquired visible difference versus those with a congenital visible difference.

Acceptability and feasibility of an online psychosocial intervention for Dutch adolescents with a visible difference: A mixed-methods study

The acceptability feasibility of YP Face IT was tested in interviews with 14 adolescents with a visible difference. Results show YP Face IT may be acceptable and feasible.

Reducing social anxiety in adolescents distressed by a visible difference: Results from a randomised control trial of a web-based intervention

This article features the results of a Dutch and Norwegian RCT investigating YP Face It.

Emotional and Behavioral Problems in Children With a Cleft Lip With or Without Palate or an Infantile Hemangioma

This article features a cross-sectional study on 182 children with a cleft lip with or without palate or infantile hemangioma.Analyses indicate that parents reported less emotional and behavioural problems compared to other children. Problems reported were mainly related to learning difficulties. Mothers also reported more emotional and behavioural problems.

Parenting children with a cleft lip with or without cleft palate or a visible infantile haemangioma: a cross-sectional study of distress and parenting stress

A talk focusing on the results of the paper published in the Cleft Palate-Craniofacial Journal.

Acceptability and feasibility of an online psychosocial intervention for adolescents with a visible difference: a mixed-methods study (preprint)

An acceptability and feasibility study for the Dutch version of YP Face IT, an online psychosocial intervention for adolescents with a visible difference.

Face IT voor jongeren en de effectiviteit daarvan

A talk focusing on YP Face IT and its effectiveness.

Parenting children with a cleft lip with or without cleft palate or a visible infantile haemangioma: a cross-sectional study of distress and parenting stress

This article features a cross-sectional study on 400 parents of children with a cleft lip with or without palate or infantile hemangioma.Analyses indicate that these parents report less parenting stress than other parents. Parenting stress is mainly related to child behaviour problems and additional condition-related problems.

Investigating online psychological treatment for adolescents with a visible difference in the Dutch YP Face IT study: protocol of a randomised controlled trial

This article features the trial design of the Dutch YP Face IT study. This study is set up to investigate the effectiveness of an online psychological intervention for adolescents with a visible difference.